Being diagnosed can be a daunting experience. The good news is there are a ton of wonderful organisations out there who can help. Whether you’re looking for more information, struggling to get a diagnosis, or want to seek out a support network, you are not alone.

Looking for medical advice?

Please be aware that many of these groups are unable to provide medical advice and typically focus on their own experiences. If you need medical advice, please contact your GP.

Want to be added?

If you’re an organisation or head a support group and want to be added, let me know!